‘I punched a barrier so people can follow me’: the Brit boyband film putting autistic actors in the spotlight (2024)

‘I’ve always dreamed of being in a boyband,” says director Eddie Sternberg, laughing – then quickly adding for clarity: “I’m kidding!” He’s talking about his debut feature, I Used to Be Famous. It’s the story of a washed-up former pop star played by Deadpool actor Ed Skrein, who gets his musical mojo back by jamming with a talented autistic drummer (played by newcomer Leo Long).

Actually, says Sternberg, he got the idea for the film 10 years ago when pop stars started doing comeback tours. “Blue, 5ive, Eternal – all these bands from when I was a kid.” Grabbing at a final 15 minutes of fame, they were only in their late 20s or early 30s. “I found that tragic, the idea of people having their peak in their teens or 20s, then trying to fill that void. And I love redemption stories.”

In 2015, he turned the idea into a short film, also called I Used to Be Famous. Now comes the feature film, commissioned by Netflix. It’s a co*ckle-warming heartfelt British movie in the style of The Full Monty and Billy Elliott, aiming to deliver all the feels.

“Feelgood doesn’t need to be a cuss word, you know,” says Skrein, grinning over Zoom from LA. He plays Vinnie D, who used to be a member of Britain’s biggest boyband. That was 20 years ago; since they split he has watched his former bandmate and rival become wildly successful, reaching Robbie Williams levels of fame. Vinnie’s solo career has reached the dizzy heights of busking around Peckham – using an ironing board as a keyboard stand.

‘I punched a barrier so people can follow me’: the Brit boyband film putting autistic actors in the spotlight (1)

Like the character he plays, Skrein has turned his life around more than once. “I’m going to be 40 next year,” he says, stroking his chin. “I’ve been on a couple of journeys.” Which is a bit of an understatement. After falling in with the wrong crowd, at 17 Skrein was stabbed in a knife attack that put him in hospital with a collapsed lung. Knuckling down, he enrolled on a BA in fine art at Central Saint Martins. He’d paint by day and hang out at the recording studio by night, where his mate, rapper Plan B (AKA Ben Drew), was writing an album.

Skrein started rapping himself. He dreamed of becoming an underground sensation, a breakout performer “with integrity”. Then came an epiphany in the cold light of his late 20s: “OK: this is the reality. There’s no money in underground music.” By that point he had a baby. “You can’t support a kid with it,” he laughs. He taught swimming to children at the local sports centre – a “legit, normal job”, which he loved. Still, there was a sense of failure: “The crushing feeling of not achieving what you had projected to the world that you were gonna do.”

Skrein started acting when Plan B cast him in a short film, which led to a role in the rapper’s 2012 movie Ill Manors. Since then, his career has rocketed, with parts in Game of Thrones, superhero flick Deadpool, the Transporter franchise and Barry Jenkins’ If Beale Street Could Talk.

Still, he could relate to Vinnie’s frustrations: the “compare and despair … I remember that time for myself,” he says. Besides, plenty of his mates in music never made it. “A lot of my peers didn’t achieve, didn’t buy houses and cars.” A lot of them now have mental health problems and addictions. “So, when you talk about drawing on these experiences, yeah.”

In the film, his character Vinnie gets a refresher lesson in creative integrity from a teenage drummer with autism who is applying to music school. That character, Stevie, is inspired by Sternberg’s cousin Saul Zur-Szpiro, a drummer who is autistic and has high support needs that require full-time care. Zur-Szpiro first picked up drumsticks at 10 – “at the time he didn’t have the strength to hold them”. Now he plays with rock band the AutistiX, which has a mix of autistic and non-autistic members.

Sternberg tells me about a charity gig the AutistiX played a few years ago, when they were unexpectedly joined on stage by Tom Jones. “I remember seeing that video and being blown away, knowing where Saul came from. Saul was someone who didn’t like crowds, didn’t like loud noises, and suddenly he’s performing in front of a thousand people with Tom Jones. For me that was the power of music, without wanting to sound cheesy.”

In the film, Sternberg wanted to create a representation of an autistic experience that felt real: “I think it’s important that neurodivergent people see a reflection of themselves authentically on screen.” He worked closely with the National Autistic Society, sending drafts of the screenplay he co-wrote with Zak Klein to the charity’s script reader, who is autistic – “making sure that they felt it was true.”

To find an actor to play Stevie, a nationwide callout went out to autistic and neurodivergent musicians and actors. “Our focus was on finding someone that had that lived experience,” says Sternberg. Films have often come under fire for hiring neurotypical actors in autistic roles. You get the impression the thought never crossed Sternberg’s mind. “I wouldn’t rule anything out in theory,” he says slowly, as if he was considering the idea for the first time. “But I was quite confident that we would find the right person who is neurodivergent. There’s plenty of neurodivergent and autistic actors – actors who have not had opportunities in the past.”

‘I punched a barrier so people can follow me’: the Brit boyband film putting autistic actors in the spotlight (2)

One of the hundreds of tapes that landed in his inbox came from musician Long – filmed by his mum at home in Hampshire. Long arrived at the audition in London with a banjo and an Irish bodhrán (drum) under his arm. “His personality was amazing,” remembers Sternberg. “He was also going through a relatively similar journey to Stevie. He was 19, pushing through into his 20s. He understood a lot of what Steve was going through. Also, I loved his story. He was nonverbal until he was nine years old.”

Over a video call, Long, now 21, describes himself as a “young neurodivergent bloke”. This is his first interview with a national newspaper, but he’s relaxed.

Did you have any anxieties about starring in a film, I ask? He grins ear to ear. Nope. “I think I’m pretty confident as an actor.” Quite rightly, he is proud of his achievements. “I punched a barrier so people can follow me.” What does he think is the message of the film? “I think it’s a brilliantly uplifting film about music bringing people together.”

Also on the call is acting coach Tricia Hitchco*ck, who supported him throughout the process. She works with Access All Areas, a theatre company for autistic and learning-disabled actors based in London. “It’s a creative coach; you take on acting technique as well as the person.” After their first meeting (“in a Pret a Manger” says Long), they did four half-day workshops together. “We started right at the beginning,” Hitchco*ck says. “Talking about what acting is.” Later they began to explore Stevie the character. “Who is Leo and who is Stevie? That is very important with neurodivergent people.”

I ask Long: what are the similarities between himself and his character? He beams. “Two similarities. One, they play music, drums. And two, wanting to leave home, being independent.” Happily, the film has brought him closer to the second goal. Long is speaking from Sheffield where he is rehearsing another role, this time in a theatre production of Much Ado About Nothing.

The actor who plays Stevie’s single mother, Amber, is The Walking Dead’s Eleanor Matsuura. It’s the kind of role that can be a bit of a turn-off: the anxious parent, all sunken eyes and worry lines. What appealed to Matsuura was that Amber wasn’t “the overprotective mother”. She is steely and emotionally attuned, an effective advocate for her son. Her concerns about Stevie are grounded in experience. The role got Matsuura thinking about the labels that get put on parents – “especially mums,” she says, pulling a face. “Like ‘helicopter’ and ‘overbearing’. Such harsh terms.”

I ask Sternberg how he modified working practices on the film set for Long and the other neurodivergent actors, who were hired to play members of a drumming club Stevie belongs to. (You can spot Zur-Szpiro, wearing an AutistiX T-shirt.) “The main thing was allotting time and safe spaces,” says Sternberg. “I wanted to create a nice, relaxed set.”

That said, neurodivergent actors were the “most efficient,” he adds. “They were ready to go. Saul especially, he loves repetition. So, because we’re doing so many takes, he really enjoyed that. He’d get more and more involved with each take.”

Has his cousin seen the film? “Yes. It was absolutely magical. He was leaning forward watching it the whole time. When it got to the end, he just turned to me and gave me a thumbs up. It gave me shivers.”

‘I punched a barrier so people can follow me’: the Brit boyband film putting autistic actors in the spotlight (2024)

FAQs

Who is the autistic boy in I Used to Be Famous? ›

It follows the story of Vince – played by Ed Skrein – who used to be in a chart-topping boy band, before finding himself alone and struggling. He forms a friendship with autistic drummer Stevie – portrayed by Leo Long – after an impromptu music jam on the streets of Peckham.

Is Stevie in I Used to Be Famous actually autistic? ›

Long, who plays Stevie who has autism, is neuro-divergent himself and diagnosed with a speech and language condition. Long said he is determined to make the industry more 'people-friendly' for disabled musicians & actors.

Are the actors from As We See It truly autistic? ›

Many of the actors, writers and crew members have Autism including three of the show's lead actors, Rick Glassman, Albert Rutecki, and Sue Ann Pien.

What is the BBC drama about the boy with autism? ›

The A Word is a BBC television drama series, based on the Israeli series Yellow Peppers. The series follows a young boy and how his family cope with the revelation that he has autism spectrum disorder.

Who is the autistic person who is famous? ›

There are many other famous autistics including Alex Reid, Dan Ackroyd, Daryl Hannah, Susan Boyle, Courtney Love, Jessica Applegate and Wentworth Millar. There is speculation that historical figures such as Alan Turing, Mozart, Einstein and Sir Isaac Newton had autism.

What actor has an autistic child? ›

Brendan Fraser is opening up about what it's like being a parent of a child with autism. Speaking about his experiences raising son Griffin, 20, during a recent sitdown with Howard Stern for his SiriusXM radio show, The Whale actor, 54, talked about making an effort to reach out to fans with autism at public events.

What singer has Asperger's? ›

Courtney Love

Courtney Love's career as a singer and actress, and her marriage to Nirvana's lead singer Kurt Cobain, have earned her a spot as one of Hollywood's elite. The singer revealed that she was diagnosed with a mild form of autism at age 9 in her biography Courtney Love: The Real Story.

What actress was diagnosed with autism? ›

Daryl Hannah is a famous actress who has starred in movies such as Blade Runner and Kill Bill. She was diagnosed with autism as a child and struggled with social interaction and communication.

What country singer has autism? ›

Born eight weeks premature in 1995, country singer Cutter Elliott was diagnosed with cerebral palsy, autism, and is both partly blind and deaf.

How do you apologize to an autistic person? ›

Explain you didn't mean to make them upset. Trying saying, “I'm sorry you are hurting.” Recognize and take responsibility for your mistake, even if it was an accident. Tell them that you hope they feel better.

What shows have autistic female characters? ›

In contrast, Everything's Gonna Be Okay and Heartbreak High are ground-breaking. Everything's Gonna Be Okay was not only the first television series with an autistic female lead, but also the first autistic lead played by an autistic actress.

Who was the first autistic actor to play an autistic character? ›

Mickey Rowe is an autistic and legally blind author of the award-winning book Fearlessly Different: An Autistic Actor's Journey to Broadway's Biggest Stage and the first autistic actor to play the lead role in the play The Curious Incident of the Dog in the Night-Time.

What actress is married to an autistic man? ›

Amy Schumer is sharing some personal information about her husband Chris Fischer. In her upcoming Netflix special, Amy Schumer: Growing — which begins streaming on Netflix this week — the 37-year-old comedian reveals that her husband, 39, is on the Autism spectrum.

What is the Hallmark movie about an autistic boy? ›

Follows a single mother and her teenage son with autism, who come to a crossroad during Christmas.

What is the show about autistic adults on Netflix? ›

Three autistic roommates find a way to live together and strive for similar things in life.

Who is the guy with autism on Netflix? ›

Atypical is an American comedy-drama television series created by Robia Rashid for Netflix. It focuses on the life of 18-year-old Samuel "Sam" Gardner (Keir Gilchrist), who is on the autism spectrum.

Who is Disney's first autistic character? ›

Renee is Pixar's first nonspeaking autistic character. Her voice actress, Madison Bandy, is also autistic and non-verbal. Renee is hypersensitive to sound.

Does the boy who plays Leo have autism? ›

"That I was there for Olivia, we got this, this is going is going to be OK, and I think she has to then also come to terms with it in her own heart." Their child in the show, Leo, is played by Easton Sweda, a young autistic actor.

Who is the famous autistic piano player? ›

Derek Paravicini (born 26 July 1979) is an English autistic savant known as a musical prodigy.

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